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0 pointsMz8y ago0 comments

You are quoting Wikipedia at someone who HAS CF? Is your knowledge of CF based completely on reading crap online? Because mine absolutely is not.

All I'm saying is, just because people disagree with you doesn't mean they're wrong.

And all I am saying is I have heard this kind of dismissive crap from the "peanut gallery" before. It isn't anything new or novel for people to treat me in a completely disrespectful, dismissive fashion.

So if that is all you have to bring to this discussion, then I think I am done. Because it isn't a good faith tactic At All and I have wasted enough of my life on assholes on the internet who are sure that I am crazy because REASONS, none of which are at all actually logical or scientific, though that is what they are typically claiming as justification for just crapping all over me gratuitously.

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ShannonAlther8y ago

I don't believe I've been disrespectful or dismissive at all. I included the reasons I think you're mistaken, and I've cited Wikipedia because going through the back issues of the NEJM and the Canadian Respiratory Journal for citations would take too long to respond in a timely fashion. If you'd like to explain why you think lifestyle interventions are helpful for other cystic fibrosis patients, please do! I can also grab better citations, if you really want.

MzOP8y ago

No, you are being dismissive. Maybe you don't see that. But there is no point at which you have expressed genuine curiosity.

Your assertion that it can't be done and that I merely have a milder form of CF are simply ways of dismissing the idea and they aren't anything I haven't heard before. If being contemptuous of me personally and dismissive of 16 years of my life isn't your intent and you are genuinely curious, you are utterly failing to communicate that.

ShannonAlther8y ago

Then I will ask directly: what lifestlye interventions have you implemented, and how are they helping you?

Edit: Nevermind, you said it involved dietary change to handle acidosis. That's great, but is it related to the bacterial problem?

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0 pointsMz8y ago0 comments

You are quoting Wikipedia at someone who HAS CF? Is your knowledge of CF based completely on reading crap online? Because mine absolutely is not.

All I'm saying is, just because people disagree with you doesn't mean they're wrong.

0 comments

ShannonAlther8y ago

MzOP8y ago

No, you are being dismissive. Maybe you don't see that. But there is no point at which you have expressed genuine curiosity.

ShannonAlther8y ago

Then I will ask directly: what lifestlye interventions have you implemented, and how are they helping you?

Edit: Nevermind, you said it involved dietary change to handle acidosis. That's great, but is it related to the bacterial problem?

1 more reply

j / k navigate · click thread line to collapse